Advocates for the Reform of Prescription Opioids is a bi-national organization in the U.S. and Canada, comprised of people who have been adversely affected by the consequences of the massive over-prescribing of prescription opioid pain pills, otherwise known as narcotics. We are bereaved parents, children, siblings and spouses, families of those suffering through an addiction, pain patients,...
This site provides access to patients advocates, patient navigators, case managers, elder care advocates, home health, medical billing advocates, legal and other forms of patient assistants who may be able to help you or your loved ones manage those many health care challenges.
Our VISION: To create an enduring network of allergy and immune disease experts whose discovery and development efforts contribute to reductions in the impact of allergic and related immune diseases nationally and globally.
Our MISSION: To catalyze and support discovery, development, networking, capacity building, commercialization and knowledge translation that contribute to reducing the...
The Best Medicines Coalition (BMC) is a broad-based alliance of organizations and individuals with a shared vision of equitable and consistent access for all Canadians to safe, effective and good quality drugs which improve patient outcomes. Within this context, the BMC’s areas of interest span from approval and reimbursement through patient safety concerns.
As an important aspect of its work,...
Canada Health Infoway is an independent, not-for-profit organization funded by the federal government. Infoway jointly invests with every province and territory to accelerate the development and adoption of information and communications technology projects in Canada. Fully respecting patient confidentiality, these secure systems will provide clinicians and patients with the information they need...
The CAPCH is founded on the belief that the Canadian Health System should inform, empower and support each person as the manager of their well-being and that all Canadians should have access to a defined, publicly-funded level of care and service. Our philosophy is that our health system should be “people-centred” rather than driven by political goals, professionaland special interest groups, or...
Our Mission:
To improve the quality of life and health outcomes for individuals with congenital heart defects: by raising awareness, providing peer support and mentoring, and advancing research.
The objectives of the Canadian Congenital Heart Alliance (CCHA) include the following:
Raising awareness of congenital heart defects (CHD) and the CCHA within the congenital population, medical community...
The Canadian Epilepsy Alliance (CEA) is a Canada-wide network of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and public awareness. CEA works with the International Bureau of Epilepsy and participates in global intiatives representing those living with...
In March of 2008, Daniel Stolfi was diagnosed with Acute Non-Hodgkin's T-Lymphoblastic Lymphoma, an aggressive form of cancer that would need equally aggressive chemotherapy treatment over the following two years of his life. Just when his acting career in the big city was starting to take off, he needed to put it all on hold to embark on the most physically, mentally, and emotionally draining...
A Cautious Patient Community is a local group where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care.The ultimate aim is to encourage patients to participate in their healthcare in order to reduce the many injuries that misdiagnosed and mismanaged care...
Connected in Motion’s mission is to foster a community of people living with Type 1 diabetes so that they may inspire one another to live life without limits.
We create a culture of support and engagement in diabetes self-management through peer-based experiential diabetes education physical activity and outdoor adventure pursuits. By motivating individuals to take charge of their health today,...
Drugwatch is dedicated to informing you about seemingly safe, doctor-prescribed drugs and medical devices that could negatively impact your health and life.
An accomplished speaker and writer in his professional life before his
illness, today Dave is actively engaged in opening health care
information directly to patients on an unprecedented level, thus
creating a new dynamic in how information is delivered, accessed and
used by the patient. This is revolutionizing the relationship between
patient and health care providers, which in turn will...
This is the place for news about Erella's medical challenges and some images from her books. With very creative drawings, Erella captures thoughts and feelings potentially felt by patients everywhere.
Using Finding Healthcare.ca you can search for waitlist information, search private clinics in your province and local area, search medical tourism services, and find related links.
The mission of this website is to: Offer information to help find medical care now, Give a voice to those who have experience and wisdom to share, Promote an open discussion among Canadian citizens for a renewed...
Hamilton Health Sciences is a family of six unique hospitals and a cancer centre, serving more than 2.3 million residents of Hamilton and Central South and Central West Ontario.
Our facilities offer a range of acute and specialized services, catering to health care needs from preconception through to aging adults. Each of our hospitals has specific areas of expertise and together, Hamilton...
The purpose of HMRx is this: to share information of relevance to the healthcare/hospital industry in an op-ed format that sparks discussions among clinicians, constituents, consultants, pundits, and administrative/executive professionals.
The Health Experience Research Group has created a unique database of personal and patient experiences through in-depth qualitative research into over 50 different illnesses and health conditions. The results of our research are published on two websites – www.healthtalkonline.org and www.youthhealthtalk.org which are aimed at patients, their carers, family and friends, doctors, nurses and other...
Help with Healthcare is a professional patient advocacy service. It is unique in that it is completely independent. Services are available in person as well as by telephone or other means of communication as determined by the patient.
"I believe in universal health care. I just want to make it better. And I think we can do that within existing budgets. It’s worth a try."
Great pages like: A failure to communicate Ageism in Health Care Doctors Doom & Death Health care waste Placement Problems & Trust Sound familiar? Tips for patients & families Tips for those in care To Come What do we do?
This is the largest on-line community for sufferers of Irritable Bowel Syndrome (IBS). Review its Online Support Group Checklist and Signup for our free community and join the conversation with its 42,332 active members.
The Impact Health Improvement Action Society of British Columbia (ImpactBC) is a registered non-profit organization headquartered in Vancouver, Canada. ImpactBC is governed by a Board of Directors and operated by a dedicated team of staff and contractors located around British Columbia, Canada and the US.
ImpactBC was formed to help improve the lives of British Columbians by accelerating...
Inspire builds online health and wellness communities for patients and caregivers, in partnership with national patient advocacy organizations, and helps life science organizations connect with highly engaged populations.
Lynn Lane is a documentary filmmaker and photographer living in Houston, Texas who was diagnosed with cancer in 2008. She is also the executive director/founder of the "Voices of Survivors Foundation", a 501(c)(3) nonprofit dedicated to the exploration of what 'Survivorship' means to the individual 'Survivor' in a documentary media format.
This is a national patient-led organization dedicated to the prevention and elimination of melanoma. Established in 2009 by a small group of patients and caregivers, the MNC works in collaboration with medical professionals, health care agencies and other stakeholders to educate, advocate and fund for: Early diagnosis and effective treatment of Melanoma Education Prevention and awareness...
What are the users’ committee and the in-patients’ committee?
The members of the users’ committee and the in-patients’ committee
are the guardians of users rights. These committees must ensure that
users are treated with respect and in recognition of their rights and
freedoms. They are an important voice for users to communicate with the
MUHC.
Respect for the rights of users, the quality of...
The mission of the Multiple Sclerosis Society of Canada is: To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.
Our two major programs provide hope for the future through the support of MS research into the cause, treatment and cure of the disease and hope for today through our many services that assist people with MS and...
National Voices is the coalition of national health and social care organisations that ensures a strong voice for all those who come into contact with the NHS and care services, and for the voluntary organisations that work for them. Its broad membership, rooted in people’s experience, represents millions of people, and covers a diverse range of health conditions and communities.
It is the only...
NavigateThis.org is a project of Youth4Health, a community-based research initiative led by Dr. Alex Jadad and Dr. Andrea Cortinois of the People, Health Equity, and Innovation (PHI) Group and Dr. Cameron Norman of the Youth Voices Research Group (YVRG). Youth4Health has been made possible through a grant from Citizenship and Immigration Canada.
nhsManagers.net brings the latest news, comment and analysis important to NHS Managers. Thousands of NHS managers, all over the UK, receive the mailing up to 3 times a week.
nhsManagers only mail a newsletter when something really newsworthy and directly relevant to the role of an NHS manager.
Self-titled 'your primary source for primary care', this site offers links to patient stories, a quarterly report, and a variety of downloadable patient forms. You must login to download. "We are compiling forms you may need/want when you go to see your doctor.
We will be adding forms on a continual basis so if what you need is not
here, check back later or let us know about a form you think...
Ontario Peer Development Initiative’s mission is to acquire, understand and amplify the unique and distinct voice of consumer/ survivor organizations across Ontario. The experiential expertise of our peers will shape the mental health system to achieve a valued, recovery- oriented, community-base approach to support.
There is an inevitable evolution, some might even say revolution, that is taking place in healthcare. This inevitability, termed Patient Destiny, pertains to the fact that patients are beginning to demand better healthcare information. Patients must be able to access their own personal health information in order, ultimately, to partner with providers in the management of their health and...
Patient Opinion was founded in 2005 and since then has grown to be the UK's leading independent non-profit feedback platform for health services. Patient Opinion is about honest and meaningful conversations between patients and health services. The belief is that your story can help make health services better. How it work:Share your story of using a health serviceThey send your story to staff so...
Who we are: The Patient Voices Network is led by ImpactBC in collaboration with Patients as Partners, Ministry of Health. ImpactBC is a not-for-profit agency and will continue to develop partnerships with Health Authorities, other non-government organizations (NGOs), universities and the private sector.
What we do: The Patient Voices Network creates mechanisms for patients, their families and...
This website operates as a forum for patients to publish their experiences with a particular health care institution or facility. The reports published by patients may be read by any visitor to the website. The key feature is the publication of patient experiences at a particular health care institution and that institution's response to the patient's experience, regardless of whether the patient...
PatientsLikeMe is a health information sharing website for patients. Only here do patients like you have the opportunity to share both personal stories and health data about your conditions to help uncover great ideas and new knowledge.
By sharing information on our site, you can put your disease experiences in context and find answers to the questions you have. You can:
Pulse is an online magazine that uses stories and poems from patients and health care professionals to talk honestly about giving and receiving medical care.
Pulse is also an online community, a chance for patients, doctors, nurses, social workers—everyone—to come together, share experiences in health care, and explore a common wish for a humane system of health for all.
Despite the...
Foreword by Health Service Ombudsman for England, Ann Abraham:
I am laying before Parliament, under section 14(4) of the Health Service Commissioners Act 1993 (as amended), this report of ten investigations into complaints made to me as Health Service Ombudsman for England about the standard of care provided to older people by the NHS.
The complaints were made about NHS Trusts across England,...
S.U.G.A.R. (Support Unlimited Guaranteed for Appliances Required, Assistance for Diabetic Devices) actively serves the people of Canada by bestowing diabetic devices and or diabetic needs to individuals who are unable to afford or acquire them thus enhancing the quality of life they richly deserve.
"Help Prevent Harmful Medication Incidents." This website does not provide medical advice. If you require medical advice, contact your healthcare provider or, if you think you may have a medical emergency, call 911. “Health professionals and consumers can play active roles in preventing mistakes in health care. SafeMedicationUse.ca provides a way for consumers to report medication incidents and...
Participatory Medicine is a cooperative model of health care that encourages and expects active involvement by all connected parties (patients, caregivers, healthcare professionals, etc.) as integral to the full continuum of care. The ‘participatory’ concept may also be applied to fitness, nutrition, mental health, end-of-life care, and all issues broadly related to an individual’s health.
What’s a Sunshiner? Frail old people who have five or more of these characteristics:
I’m near the end of my life.
Every day I need help doing things that matter.
I don’t want to be a burden on the people I love.
I have trouble getting around, trouble with my memory, or both.
I care more about being comfortable than I do about living longer.
I would love to take less...
Talkingaboutcancer.com is self-titled 'the only site on the Internet dealing exclusively with the emotional impact of cancer.' It is open to comments which make this site tremendously useful to cancer survivors and their networks of family, friends and caregivers.
Created by the Health Charities Coalition of Canada (HCCC), the “How To” Health Guide was developed to assist patients, caregivers, friends and families in managing information about the Canadian health care system, which can often be challenging to navigate.If you, or someone you love and care for, are trying to find health services, support or information for an illness or disease, there are...
The Canadian Skin Patient Alliance council members defined the mission of the CSPA in September of 2007 as follows: CSPA is a patient-centred organization serving patient needs to enhance care, to promote skin health and to find cures for Canadian skin patients. The following broad categories were agreed upon and were ordered in priority:
The Change Foundation is an independent policy think tank, intent on changing the health-care debate, health-care practice and the health-care experience in Ontario.
The Health Care Blog (THCB) was founded in 2003 by veteran health care observer Matthew Holt. Those first few years were great fun, if a little lonely, Now it’s commonly regarded as the leading independent group blog in health care. THCB features original opinion pieces, commentary reprinted with permission from other blogs, and lots of news and video about many different aspects of health care....
The International Journal of User-Driven Healthcare (IJUDH) is a refereed, applied research journal designed to provide comprehensive coverage and understanding of clinical problem solving in healthcare. The term "user" includes health professionals as well as patients and anyone who uses the web with a user name. These "users" generate an information flow that "drives" the system's workflow (...
