Resources

Search

Based on the feedback The Patients’ Association of Canada has received from its’ members, we are starting a peer to peer User Guide. This User Guide will include instructions and tips and also the experiences of people who come into contact with the various parts of the system. We are seeding the User Guide with information found in Navigating Canada’s Health Care by Michael Decter and Francesca Grosso (Copyright © Michael Decter and Associates Inc. and The Grosso Group Inc., 2006. Reprinted by permission of the authors and Penguin Group Canada.) Gradually this user guide will become an open-access collaboration, where everybody will be able to contribute new material and edit existing information. A panel of specialized volunteers will review contributions on an ongoing basis, to monitor accuracy and maintain standards.

Links

Patient Opinion: Every Voice Matters
Patient Opinion was founded in 2005 and since then has grown to be the UK's leading independent non-profit feedback platform for health services. Patient Opinion is about honest and meaningful...
www.patientopinion.org.uk
Advocates for the Reform of Prescription Opioids (ARPO)
Advocates for the Reform of Prescription Opioids is a bi-national organization in the U.S. and Canada, comprised of people who have been adversely affected by the consequences of the massive over-...
www.rxreform.org/
www.adrienneshnier.com
This website provides current and important information on pharmaceutical policy and regulation in the areas of:
www.adrienneshnier.com
Patientcarefeedback.ca
This website operates as a forum for patients to publish their experiences with a particular health care institution or facility. The reports published by patients may be read by any visitor to the...
Patientcarefeedback.com
Drugwatch
Drugwatch is dedicated to informing you about seemingly safe, doctor-prescribed drugs and medical devices that could negatively impact your health and life. 
Drugwatch
Help with Healthcare: Advocacy Services for Canadians Inc.
Help with Healthcare is a professional patient advocacy service. It is unique in that it is completely independent. Services are available in person as well as by telephone or other means of...
Help With Healthcare
Canadian Epilepsy Alliance/l'Alliance canadienne de l'épilepsie
The Canadian Epilepsy Alliance (CEA) is a Canada-wide network of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families,...
http://www.epilepsymatters.com/
The "How To" Health Guide
Created by the Health Charities Coalition of Canada (HCCC), the “How To” Health Guide was developed to assist patients, caregivers, friends and families in managing information about the Canadian...
The "How To" Health Guide
nhsManagers.net
nhsManagers.net brings the latest news, comment and analysis important to NHS Managers. Thousands of NHS managers, all over the UK, receive the mailing up to 3 times a week. nhsManagers only mail a...
nhsManagers.net
MUHC The Patients' Committee
What are the users’ committee and the in-patients’ committee? The members of the users’ committee and the in-patients’ committee are the guardians of users rights. These committees must ensure that...
MUHC The Patients' Committee
more

Patient Narratives
A Son's Death My son was killed due to negligence and incompetence at our local hospital while in the care of three doctors and one nurse. I have complained to the College of Physicians and Surgeons and to the...
When a Patient Isn't Heard This is an account of my patient experience. I am writing with the hope that something can be done so that no other person has to go through what I did. The pain and suffering I had to endure was...
'A Case History - A Family Perspective', An Exercise in Appreciative Inquiry My Aunt was given a wash and set, and a full mani pedi as a birthday present from her gentleman friend on his birthday. That night, they were going to his birthday party and he wanted her to look...
The Pear What is care?What is caring?What is the “care” in healthcare”?What is the worth of a pear.It’s Sunday September 30th, and in 6 days it will be one year since I found myself in the Emergency Room for...
Joseph Capone's Story My name is Phil Capone, and I live in the City of Vaughan – just north of Toronto, Ontario.Perhaps like most people who have previously had minimal contact with the health care system, I had always...
Learning from the Patient Experience In 2009, Mike noticed a sudden change in his wife’s short term memory. He was aware that her behavior may have been indicative of a stroke, and so he took Vickie to a nearby emergency room. After...
"Just Relax and Try Not to Move" I almost laughed when I heard that. Of course, that might have made me move, so I remained "calm". Or as calm as I can be lying on my back with my shirt off in a doctor's office. One of the office's...
You Call Yourselves Doctors  Iatrogenic Insanity.  You are a Survivor "You are a survivor" said a psychiatrist whom I had consulted eight years previously for a second opinion.  He remembered me.  I did...
more

Patient User Guide

User Guide Overview
The Early Years
The Middle Years
The Later Years
Health Care Sytem: Navigation Issues
Disease-Based Cross Listings